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privacy statement

Sands is committed to protecting the privacy of personal information which the organisation collects, holds and administers. Personal information is information which directly or indirectly identifies a person.


The purpose of this document is to provide a framework for Sands in dealing with privacy considerations.


Sands collects and administers a range of personal information for the purposes of providing support to families whose expected baby has died. Sands is committed to protecting the privacy of personal information it collects, holds and administers.

Sands recognises the essential right of individuals to have their information administered in ways which they would reasonably expect - protected on one hand, and made accessible to them on the other. These privacy values are reflected in and supported by our core values and philosophies.

Sands is bound by laws which impose specific obligations when it comes to handling information. The organisation has adopted the following principles contained as minimum standards in relation to handling personal information.

Sands will:

  • Only collect information which the organisation requires for its primary function;
  •  Ensure that individuals are informed as to why we collect the information and how we administer the information gathered;
  • Use and disclose personal information only for our primary functions or a directly related purpose, or for another purpose with the person's consent;
  • Store personal information securely, protecting it from unauthorised access; and
  • Provide individuals with access to their own information, and the right to seek its correction.




  • In accordance with the NPPs, where practical, contact may be anonymous.
  • During the course of providing our services, it may be necessary to collect personal information. This is only done if it is considered necessary.
  • Personal information may be collected directly when it is provided by phone or in documents such as application/membership forms.
  • Individuals will be advised when personal information is collected, the purpose of collection and how it can be accessed by the stakeholder.


Use and Disclosure

  • Personal information may be viewed only by Sands employees, office bearers and authorised volunteers.
  • Individuals may request that personal information not be used for the purpose of fundraising for Sands.
  • Information will only be used for the primary purpose for which it was collected or a directly related secondary purpose.
  • For other uses, Sands will obtain consent from the affected person.

Data Quality

Sands will:

  • Take reasonable steps to ensure the information the organisation collects is accurate, complete, up to  date, and relevant to the functions we perform.

Data Security and Retention

Sands will:

  • Safeguard the information we collect and store against misuse, loss, unauthorised access and modification.
  • Only destroy records in accordance with the organisation's Records Management Policy.


Sands will:

  • Ensure individuals are aware of Sands' Privacy Policy and its purposes.
  • Make this information freely available in relevant publications and on the organisation's website.

Access and Correction

Sands will:

  • Ensure individuals have a right to seek access to information held about them and to correct it if it is inaccurate, incomplete, misleading or not up to date.


Sands will:

  • Give individuals the option of not identifying themselves when completing evaluation forms or opinion surveys.

Making information available to other organisations

Sands can:

  • Only release personal information about a person with that person's express permission. For personal information to be released, the person concerned must sign a release form.
  • Release information to third parties where it is requested by the person concerned.